2013 to 2020
CHEEC provided database support and applications development for the Muscular Dystrophy Surveillance Tracking and Research Network (MDSTARNet). The study is a multi-center multi-state research, tracking and surveillance effort that is identifying all people with childhood-onset Duchenne and Becker muscular dystrophies (DBMD). Collaborators are the Centers for Disease Control and Prevention (CDC), and researchers from Arizona, Colorado, Georgia, and New York. At the University of Iowa, the Iowa Registry for Congenital and Inherited Disorders is coordinating research efforts with assistance from the Iowa Department of Public Health.
Go to the CDC website for further information: http://www.cdc.gov/